There are so many moments each day that I struggle. "What does it hurt if we don't stretch as much as we should.. It's not like I see a difference each day??" "Ugh.. Let's skip oral feeds today.. I don't have the time or energy to deal with it." "Tummy time.. We can just do it tomorrow.. I'm tired." "Patch, smatch.. Let's give ourselves a bonus patch free hour today. It's not like I can tell its making a difference" and on and on daily battles that go on in my head. I never (ok, rarely) give in and adamantly refuse to compromise on stretches and patching, but it's a battle not to give in to the voice in my head somedays when work calls pour in, Addie is cranky, and I need another cup (pot) of coffee just to function. You don't see daily, major improvements in our world. You just don't. I need positive feedback to push myself harder.. But I don't get that often with these things. Improvements come suddenly and in a flurry and then we're back in a stagnant lull for weeks or months. During those times when I want to give up, even just for an afternoon, I hear Mrs. Ingram pushing us to run harder and faster.. "Discipline Yourself!" Thank you, Mrs. Ingram.. You've helped me through some of the toughest make or break moments of my life.
There are rewards for our hardwork . A couple of weekends ago I stood and watched Addie sit and play in her crib. On her own. For at least 15 minutes. Did I mention she was sitting? And playing with toys? On her own? And she was smiling and having fun? While wearing her patch and hearing aids??? She actually would play with a toy,
So, on days when I want to quit or wonder why these "little" things matter, I'm going to come back to this blog so I can remember that they are all actually a very big deal. Discipline yourself.. It really does make a difference!!

Oh, Rachel, thanks so much for sharing this...it's so good to get another peek into your world.
ReplyDeleteI know it must seem so hard, and, yes, unfair, at times, but I'm so glad you have this perspective and that God gave you Mrs. Ingram at a very pivotal time in your life. Thanks for being so loving and disciplined and for being such a great mommy to Addie!!! I'm so priveleged to have known you during your teen years and now to get to share from a distance the wonderful young woman you are becoming...and, remember, God isn't finished with you yet. He'll continue to mold you and shape you into the image of Christ as you yield to His will, as long as you have breath!
Jeremiah 29:11
Love you, girl,
Debbie C.
I love you, Mrs. Debbie!! Thank you for following our journey and for the encouragement.. It always come just when I need it. I've been following your family's travels and am so excited you all get to spend some quality time with Tamara, Jeremy & those sweet grand kids of yours!! The rest of your family is also as beautiful as ever. Please keep me / us in your prayers. It is a daily struggle on all levels, but I am so thankful for this beautiful, strong girl and the many countless blessings God has brought into my life through this experience.
DeleteMuch love!!
Rachel
You are just awesome. I am mesmerized/inspired/awestruck by your daily life and mostly by your attitude. Addie is one lucky little girl to have such a determined mommy!
ReplyDeleteYay!!! So happy for you and so proud of Addie. :)
ReplyDeleteI know when Azalea finally came home from the NICU minus all the tubes and wires, I was filled with so much pride just seeing her finally... looking like a baby (pretty much doing nothing but sleep all snuggled up)! It was bring me to tears, Ha.
We truly have been blessed with little miracles and watching them simply grow and thrive and become who they are meant to be is the greatest reward, even if it is in their smallest achievements.